I am so sorry the Dr's treated you so badly but happy you finally got the sulfa and hope you are on the mend. Sometimes I have just wanted to SLAP a Doctor!! LOL
Stacey, sorry about that 50, It's a hard BDay but just remember it beats the alternative Happy Birthday!! I hope your Mom continues to improve, I am so sorry she's ill. Please post Coco swimming
Sue, I hope your Daughter is doing better. Are you staying on Synthroid now?
Cabro. I am saying prayers that your surgery goes well and you have a speedy recovery. I am so glad that you're feeling better on Nature-Throid & have good labs. Just post when you are up to it, I know you have a lot going on and I never meant to make you or anyone else feel bad I am so sorry if I did.
Miss Janet don't be coy, I'm not sure when it is but Happy Birthday to you as well!! : )) Maybe that's why ou have a new puppy : ) just saying!! Lol
So Far I'm thinking Fifty is Fun, Fearless and FABUOUS!! ; ))
Of course that's on a good day when I don't have a migraine and I have energy lol!! But I swear by my Cytomel. Without that I would be in bed and still with a puppy. Lol I'm on my phone so I can't post latest of Coco but she's 33 lbs of all muscle and Chocolate ; )
Have a good Day and Thanks again Janet!! : )) xoxo
Post by karenandcollie on May 9, 2015 12:22:20 GMT -6
This is a reliable site for information. I want to bring to your attention the various drugs that deplete magnesium and can cause arrhythmia that leads to A Fib. I learned this one from experience by taking one of the antibiotics that do this very recently... just this week! I had three mornings of severe arrhythmia that almost brought me to me knees. It did not trigger A fib, but after putting 2 and 2 together and checking Bactrim out in the PDR , I stopped it immediately. The attacks all happened in the morning, and they took 2 hours to resolve by pumping myself back up with magnisium and taking Coreg, an anti arrhythmia medication. Very scary. I handled the full A Fib better than this. But I did not need hospitalization, corrected it on my own. This morning was arrhythmia free by not taking any Bactrim last night or this morning.
Post by karenandcollie on May 9, 2015 12:30:33 GMT -6
I forgot to mention, the first question I asked the pharmacist when I picked the Bactrim up was "Does Bactrim trigger A Fib?" Her response was no. I don't blame her, it is basically the patient's responsibility to be responsible for their own health. And I am not upset with her or the prescribing DR, I am upset with myself for not checking before I took it. Please, always check out your medications before you take them YOURSELF to make sure they do not interact with anything else you are taking or effect any one of your medical issues. You cannot depend on anyone but yourself!
The Charge Pharmacist did send a note to the prescribing DR about the reaction. He backed it up with documentation.
Wow. I have a news flash. Someone posted on Inspire this afternoon that Levoxyl is now being made in Austria. Whoa! It is 100% outsourced now. So there you are. That's the difference.
I think Bonnie will see the post, since she is the one who started the thread on Inspire. This was the second response, other than mine. I didn't realize it was her pseudonym, so I composed a big long post that was probably everything she already knew. But I hope it will help someone else.
I don't see my endo until June 15, but I will tell him then.
Karen, that is interesting info. Thanks for sharing. I hope you are getting a new medication and will be healing soon.
Janet, how adorable Rigby is with little Mackenzie! Love the tail. :-) Thanks for your kind words. I don't have a surgery date, yet. I see the surgeon for the first time June 2. I'm thinking late July or sometime in August. I have to have 2 more root canals and from what I have read, they have to be completed 6-8 weeks before surgery. Also, I plan to get a second opinion. Lots to do in the meantime.
Oh, Stacey! I'm so sorry I missed your birthday! Happy Birthday to you, almost a week late. I hope it was wonderful.
I have a carotid ultrasound Monday and see the cardiologist Tues. I'm not looking forward to it, because my LDL remains high and I can't exercise now due to my knee. I will need for him to clear me for surgery so I'm concerned. I started on Cholestoff, but it upset my stomach. I've dropped down to 1/2 dose and doing better. I'm hoping I will tolerate it with time. It has helped a lot of people who are on the heart forum I read.
Post by karenandcollie on May 16, 2015 9:59:39 GMT -6
That is very interesting about the Levoxyl. What does that mean? Would it be the same formula or the old one? I was thinking of trying Levoxyl again, this time cutting the 200 mcg pill in half and adding 25 mcg from the remaining half. When I tried Levoxyl before, I was using a 175 mcg tablet, which is the dose I was last on before the recall. That is way too much, as I am now on 125 mcg.
I would love to get onto a heart forum. You mentioned you were on one in your message. Can you give me the Web Site?
I took the ear lab report to an ENT specialist and she said it was NOT MRSA. I will trust her over the other 2 doctors and the lab who said it was MRSA. My thinking is that the swab was taken off the outer canal, and that is where staph is naturally. To get an accurate swab of what is behind the middle ear one would HAVE to do an aspiration of the fluid from behind the ear drum. Once the fluid comes out - I have holes in both drums - it is contaminated by staph on the skin of the outer ear. We all carry staph on our skin naturally.
At any rate, I am doing much better treating myself with warm water/salt gargle, Vit C, A and zinc and lots and lots of water. I will make it.
Cabro, have you tried the red delicious apples? They are great in mopping up LDL. Also oat meal and 28 almonds a day. I don't remember if you mentioned whether you can tolerate them in past messages. I too hope you can get the LDL down. As I remember, normal is 139 or under. DRS recommend going much too low, I think, but that is a matter of opinion to many. I am sure you know this, but fish oil, either in supplements or salmon, WILL also get the LDL down. These also raise HDL which I beneficial. Do you like herring? That works and also adds a lot of VIT D and lowers BP. These have worked well for me. Herring is expensive out here, but I stretch them out by eating two small pieces every other day. I have to wash off the wine sauce - it is too salty.
Avoiding meat has helped my LDL as well. I keep my number to about 100 ish. Yes it is very hard work. I try not to talk about it too much - don't want to scare away my friends. (Who would all benefit). Some don't like to talk about health issues.
Thanks, Karen. Oatmeal holds me for about 2-1/2 to 3 hours, even eaten plain. Then I am ravenous. Other foods hold me much better. I stopped eating red delicious apples when they were always mealy here, especially off season. I do eat apples a couple of times a week. Check Inspire.com and enter "heart" in the search field. Also, I would look through www.healthline.com/health-slideshow/best-heart-disease-blogs. Most recently my LDL was back up at 132. My cardiologist has a fit over that. The range now is 0 - 99 mg/dL. My HDL is nice and high at 82. Triglycerides are fine at 61 (0 - 149 mg/dL). I can't stand herring. The only fish I like is salmon and the wild caught is usually too expensive. I'm dangerous in the kitchen now, and cooking salmon 3 nights in a row isn't going to happen (frozen wild caught from Trader Joe's has 3 servings in the package). I rarely cook anymore. I take CorOmega. Celery is a forced item for me. I've never cared for it and certainly can't deal with it every day. I eat a modest serving of lower fat red meat about once a month. I also tried a whole month of Metamucil with absolutely zero improvement. Now I can't stand the stuff. I do still eat refined carbs, and that is likely a big contributor. My Nature-Throid wears off in the evenings, and I can't do the multi-tasking that cooking requires. But I am now able to enjoy my days, especially when I have something important to do. I hope you get the infection down. Have you considered oral colloidal silver?
Hi Everyone....Stacey...HAPPY BIRTHDAY. I am sorry for being late. Remember they are only numbers. I am glad to hear that everyone is doing better. I went to the new Doctor on Thursday. He is very nice but not who I am used to. I have a year to get used to him. I could tell he was having a hectic day. I went for blood work for the thyroid and my diabetes. Friday is the BIG DAY to see the Cancer Doctor and Gynecologist. My old "GYNIE" also permanently retired. Karen, I hope you are feeling better and I totally agree that you have to do everything on your own. Cabro, please just hang in there and all will resolve itself. I am going to do some further inquiries about where levoxyl is being made. Thank you for posting that information. Sue, I hope you and Nicole are feeling better. Janet, the picture of the new "baby" and Rigby Katare so cute. Take care everyone. Love and prayers to all o you...
Post by karenandcollie on May 18, 2015 10:38:03 GMT -6
No I have not tried oral colloidal silver. I will check it out. Understand about all the things you cannot tolerate. With an HDL of 82, I would not be too worried. That is great! That high an HDL I believe would be carring away a lot of the LDL. Send ME some of your HDL! I was hoping to find some research on HDL being made up in a supplement? Or if it could be drawn from another person with very high HDL, and "transplanted" ?? Impossible. Fortunately I can tolerate cooking salmon (sometimes I boil it - it is easier) as I do not like to cook much by evening. Salmon is reasonably priced here - sometimes $5.99/pound (wild Atlantic socheye) and I buy a couple of pounds to last until the next sale.
I am not crazy about Herring myself. I am eating less of it now. Just enough to help.
Kat and Stacey and Sue - great to hear from you. I too would miss this forum. Janet, I would be happy to help you monitor this Forum if you need the help. How are you doing?
Stacey, regarding a good hemotologist, have you looked into UCSD Medical Center?
Would't it be nice if the Levoxyl in Austria was the older formula? My best wishes to all.
kat - I am sending up prayers for your BIG DAY on Friday. May God's angels be guarding and keeping you.
@karen - All of my lipid panel is good except for the LDL, always has been. My cardiologist is very concerned about it. I can only hope the Cholestoff will work out. I'm worried about not exercising and the heart muscle losing tone, also the plaque in the carotids, which pose a stroke risk. I will get the new results tomorrow.
I'm sending happy thoughts to all and praying for a better Levoxyl!
Hi everyone...I just wrote a detailed message and it did not go through. I got my blood results for my TSH and it was 1.3...last time it was 1.6. Will give you more details when I get the paper work. I am happy but still cannot understand why I do not have consistency with the new levoxyl. I called Pfizer and asked the witchy representative if they had outsourced levoxyl and she denied it and said it was only made and distributed in this country. I know the patent is up next year and when I asked her about it she told me to discuss it with my Pharmacist I HATE PFIZER for what they did to a pill that always worked to what we have to deal with now. I feel so sorry for Cabro and Karen and all the heart and lipid issues. Stacey and Sue I hope you continue to do well on whatever thyroid medicine you chose to take. Janet, please try to get enough rest because the new baby requires a lot of maintenance. Put Rigby in charge.(haha)/ Thanks Carol for the angels for the Oncologist visit on Friday. If I did not have all of you I might be ready for a PADDED CELL. I get so frustrated when people just do not understand what we have gone through because of PHARMA and the new pill making us CRAZY/// I will light candles and put all of you on the prayer list at Chapel....Love...Kat
Post by karenandcollie on May 19, 2015 12:32:16 GMT -6
KAT; You are in my prayers. Good to hear your TSH was normal. How about the other numbers, Free T3,4 and the like?
Cabro: When I was not walking I did arm lifting while sitting in a chair. I was like a chicken flopping its wings. Just pumping them up and down helps strengthen the heart muscles. Sometimes I had 10 pound weights. I always did it to music. I don't know if this might interfere with some of your other issues. I also have a Denise Austin CD for a walking exercise, low impact, and very tolerable. You get a mile walk in if you follow the entire CD. I did not always do the entire mile. All in front of the TV screen. Four steps to the left, 4 to the right, to the side, etc etc until you have walked a mile. You can go at your own pace, but it is fun watching her on the screen walking along with you. I also do not know if this might be too much for you, just making suggestions as to what I did. My cardy also told me, just getting up to walk inside or outside for a couple of minutes a few times a day, will strengthen the heart. I notice Whisper is more alert now as I am getting her up to move around for a few minutes several times a day. Just keep the body moving, even if it is lifting your feet up several times a day while sitting. The "Keep Moving" is what is important when you are less than perfectly well. I even dream of walking a mile or two. Who knows what the power of the inner mind can do.
Thanks, Karen. My neck injury prevents any significant arm weights (>2 lbs) overhead. Also, my R elbow fx (1997) gets cranky with weights and flexion. I'm active, but I am not allowed to exercise, other than aquatic therapy, which I start next Tuesday. Other exercise and the joint will suffer. Defininitely no lateral work. I do walk the dogs separately 3 X a day, and I live in a 2nd floor walk-up, so stairs with holding on. I'm sedentary once I burn through the T3 in the NatureThroid, which is usally 8 hours after 1st dose, 4 hours after 2nd dose. I have to make the most of the 6 hours when I feel the best. I've done water work in the past for fibromyalgia, so I hope to do well with the aquatic therapist. Maybe I can get good exercises for post-op to do myself, once I am healed up enough and released to go in a pool.
Kat: TSH isn't really static, certainly not with me. Has it previously been static with you? It is really more of a snapshot in time of a longterm response to thyroid hormone levels. As you know, I put more faith in free T4 and free T3 to really tell you what is going on in the body. Do let us know when you have your paperwork. I'll be very curious to see if someone can confirm that their Levoxyl bottle shows "Made in Austria" or just what it says (or doesn't). I strongly suspect they are lying. There are too many people having problems. There are 2 threads right now on Inspire about it. Maybe we might get more traction now by reporting negative symptoms to the FDA. Of couse we need to call Pfizer first). But we probably wil not get much until someone has a bottle with foreign information. Then we'll have proof that they are lying. I'll try to remember to ask the pharamacist to look next time I am there.
Post by karenandcollie on May 21, 2015 16:59:57 GMT -6
I am sorry to hear of your past injuries, and of course that would make it much harder to do any exercise. Water exercise sounds like a great therapy. Actually, we have that here at our club and I am thinking of joining some of their classes. What is stopping me? I don't have a bathing suit! Silly, but true.
If you are still taking the E Gems Elite or just plain d-alpha tocopherol, that works well in removing plaque. I don't buy the expensive E Gems any more, as for the past ten years I have been taking d-alpha tocopherol and it has been keeping my PT level in therapeutic range perfectly. So why spend more money? I get 60 gel capsules of the natural vit E at Swanson Vitamins.com for $5.99 plus 4.99 shipping.
I just got my lipid panel lab work results and I too am a little high in LDL at 133. I think I have been eating too much cheese. I like to keep it at 100 ish. I am not going to lose any sleep over this, just work at a better diet and more exercise. More oatmeal for sure. For a month I will take 500 mg B-5 at night. That works great and fast on lipids. But not everyone can tolerate it. My total chol was 204 but we all must know by now that number is not the number to watch. We must instead watch the LDL and triglycerides. My tri's were normal. Herring is working well in that area.
Will check out Inspire.com tonight. See you there. Keep fighting!
Post by karenandcollie on May 21, 2015 17:05:26 GMT -6
I now see that E Gems Elite works better than d-alpha tocopherol in removing plaque. I found a bottle of tocotrienols also at Swanson.com for minimum cost. They are well published to help in removing plaque. So is cod Liver Oil. But taste? Not for me , but it does oil the arteries and make plaque slide off very well.
Deleted: Hi, If you're new to our board and need help type a "shout out" here and anybody here will be glad to help you. Please make a name and sign in so you have email here for one of us to reply to. Janet
Nov 6, 2014 23:18:35 GMT -6
Deleted: TO ALL GUESTS: IF you want to just read the board to see what we write here - GO TO TOP TO "GENERAL BOARD" and click on that.
Nov 6, 2014 23:37:09 GMT -6
Janet: Hi Dinah!!! If you need any help send me a message. I am so happy you got on here
Mar 4, 2015 23:25:13 GMT -6
Deleted: Welcome to the group, Dinah.
Mar 5, 2015 11:22:07 GMT -6
kat: Dinah...so glad that you joined this forum. I has the Best and Brightest group of women I was so lucky to find through a DARK time of when levoxyl was taken away from all of us by Pfizer....Kat
Mar 10, 2015 5:25:41 GMT -6
Deleted: Hi All: Had a trouble getting on but finally. Still having issues new doc trying but no luck. Says I have adrenal fatigue and thyroid can not be fixed until that is fixed. I have no thyroid so its a problem. Treating with B vit - not working. Need help!
Apr 10, 2015 15:23:26 GMT -6
Janet: Welcome new members. Please post so we can get to know you
Aug 14, 2015 16:18:24 GMT -6