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Post by Deleted on Apr 6, 2015 17:54:03 GMT -6
Hi Everyone....Janet, thank you so very much for all the hard work you put into both creating this forum and now linking us to Facebook. I share your ethnicity....Irish and have to avoid the sun. I will try the four o'clock stand out in the sun routine if we ever get sunshine. Pittsburgh (where) I live ranked SECOND on a list of cities having the least amount of SUNSHINE. I believe Portland Oregon was first. How depressing. I hope the higher dose of levoxyl works and you get out of the "hypo" range and back to normal. Karen, I will explain why in another e-mail why I had to be on the 200 mcg's of levoxyl. I hope you continue to improve on the Synthroid. Thank you for all the valuable information you post. Sue, Stacey and Cabro my prayers are with you in your struggles to find the right thyroid medicine. Happy Easter to the bravest and strongest group of WOMEN WARRIORS that I am so lucky to know and have learned so much from. You never give up, are not energy drainers and always stay positive. God Bless all of you...Love...Kat Thank you for your prayers, Kat. We also need to keep praying for Bonnie as she is also really struggling. She recently tried synthroid, but it just was not for her. I had a rough few days with a tummy virus, but think it is about resolved. Last week, I visited the gyn I have seen off and on for a few years. I am having more problems with the prolapse. After struggling with this for four years now, I'd like to go ahead soon with the surgery. He is not recommending it. "We are not spring chickens" were the words he used. He has been rather negative about it all along. I had also seen another gyn when this happened. She was very eager to do the surgery, but insisted that mesh must be used. We all know how many problems are possible with the use of mesh so I did opt to have her do it for this reason. I have had physical therapy for this in addition to my weak back for almost a year now. My back is better, but the prolapse is still a big problem. I had some bleeding and irriation due to the device used for support. There really is not a perfect device for this nor is surgery always the answer. In addition to this, I still am torn about my thyroid medication. When I saw the doctor in March, she wanted me to stay on the Nature-throid. I am still having an elevated BP, and it is very hard to get it down in the mornings. My sinus is definitely better on a T4. If she changes it, she'd like me to try NP-throid. With my problems with loose stools, I am hesitant to do this due to the fact that it contains mineral oil. I agree that we must all stay positive! Never give up the quest for answers! I hope things are going well for everyone else and trust all had a good Easter. Sue
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Post by karenandcollie on Apr 6, 2015 21:48:30 GMT -6
Sue: I am so very sorry to hear of your problems with the prolaspe. My cousin had that problem and it was resolved with surgery. I do not know what exactly she had done, but I will check.
Have you ever tried compounded natural desiccated thyroid?
Karen
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Post by karenandcollie on Apr 6, 2015 22:06:23 GMT -6
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Post by karenandcollie on Apr 6, 2015 22:10:17 GMT -6
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Post by Deleted on Apr 7, 2015 12:27:41 GMT -6
Sue: I am so very sorry to hear of your problems with the prolaspe. My cousin had that problem and it was resolved with surgery. I do not know what exactly she had done, but I will check. Have you ever tried compounded natural desiccated thyroid? Karen I have not tried compounded natural thyroid as of yet. I would be interested in hearing what your cousin had done as far as prolapse goes. You have my regular email address if you'd prefer to write me there. Thanks so much Karen! Sue |
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Post by karenandcollie on Apr 10, 2015 8:54:53 GMT -6
Another important Web Site in checking out a compounding pharmacy is www.ach.org/pcab to see if your pharmacy is accredited by the Pharmacy Compounding Accreditation Board. |
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Post by karenandcollie on Apr 10, 2015 8:57:39 GMT -6
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Post by karenandcollie on Apr 10, 2015 9:14:09 GMT -6
Did you know that it is now LAW as of JAN 2014 to inform a woman if she has a dense breast on her mammogram? They also are supposed to report the category of dense breast that a woman has. There are four. This is to give a woman the option to discuss further testing with her DR. If the density is category four, which is the highest density, most insurance companies will cover an MRI for further evaluation. If you have a dense breast, it is much harder to see a cancer forming. Not to be alarmed, but important to be INFORMED! Thicker density occurs naturally as we grow older. See: www.cancer.org/breast-density-and-your-mammogram-report |
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Post by karenandcollie on Apr 12, 2015 3:18:30 GMT -6
This beats it all. I finally got the script for my compounded, and the T4 was not available. It was finally released, and will come in next week. But....the price is double. Last time I got it it was $39 for 100 days. This time it is $79. There must be a law against such an increase in such a short time. I am wondering if the pharmacist does not have any other customers for T4 and is increasing HER price? I have to think carefully before I accept this.
Karen
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Post by Janet on Apr 13, 2015 0:26:50 GMT -6
Hi,
I am so sorry to hear that, Karen. Why do you want to go off of Synthroid?
I am doing ok on Levoxyl but have a few minor issues. Hope my TSH is going down down down....
My main issue is bowel problems but I am still hypo at 13.2 last blood draw. So that could be
why.
Where is everyone??? I see people are signing in every day but not posting. Can I ask why??
Hope you're all well.
Janet
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Post by Deleted on Apr 13, 2015 10:46:40 GMT -6
I don't have that much new to post. I am waiting for my appointment with gynecologist on Friday. Trying to decide where to get another opinion if need be.
I hope that you get your issues resolved with the Levoxyl, Janet. I had bowel problems on it even when my levels were good.
Are you having new problems on the synthroid, Karen? I know I had chronic sinus issues on it. I hope compounding is not going up that much all around. I just dropped off a script for my hormone that is compounded.
Have a good week everyone. Take care.
Sue
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Post by karenandcollie on Apr 13, 2015 12:08:20 GMT -6
Janet and Sue:
A good proportion of Hashimotos patients should be on a gluten free diet. Are either of you Hashimotos? Have either of you ever tested for gluten? If you are sensitive to gluten and not eating a gluten free diet, this could be causing bowel problems.
Sue: Yes I am having issues on the Synthroid. Since increasing the dose to 125 mcg and taking the full 125 pill(not cutting in half or using the 200 mcg)I am having more hives and a lot of bad dreams. I am alergic to acacia and corn starch so I am sure there are problems with them. I started the full tablet of 125 and also noted a swollen thyroid gland. This could be part of the Hashi symptoms of an inflamed thyroid and a little hormone being released by what is left of the gland. Or I could just have an infection like a cold. I have been reading more and more about Synthroid. The STTM Web Site recommends Hashi people stay away from Synthroid. Synthroid also causes nodules. I remember one past poster on the Old Forum said she got thyroid cancer from Synthroid. I have yet to read any research on that subject. I wish we could find all the old posters.
I want to get away from ALL synthetic fillers once and for all. I could live with the Synthroid and its hives, but if there is another alternative, I want to go for it. I don't like the $79 per 100 tablets however. I pay $6.60 for 90 days of Synthroid. That is quite a difference compared to $79 for the 100 days of compounded. The un - ethics of the increase in price bothers me too.
I have yet to hear from my cousin on what she had done for her prolaspe.
Stacey: I now understand WHY you did so well on T3 alone. There is new research that now shows that our regular TSH and other tests will not be an accurate reading. That is why many people have normal thyroid readings and still have hypo symptoms. They are measuring only serum blood levels, not cellular. T3 evidently gets into the cells. Desiccated does too. I will publish the site for that article. It is a long read but well worth it. We need to see all the info out there to make solid decisions on our treatments. This article also stresses the need for patients to take full responsibility for their medical issues. We cannot put all our symptoms on a plate and hand them to a DR to resolve. We must research and learn.
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Post by karenandcollie on Apr 13, 2015 12:10:27 GMT -6
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Post by Deleted on Apr 14, 2015 17:09:24 GMT -6
Janet and Sue: A good proportion of Hashimotos patients should be on a gluten free diet. Are either of you Hashimotos? Have either of you ever tested for gluten? If you are sensitive to gluten and not eating a gluten free diet, this could be causing bowel problems. Sue: Yes I am having issues on the Synthroid. Since increasing the dose to 125 mcg and taking the full 125 pill(not cutting in half or using the 200 mcg)I am having more hives and a lot of bad dreams. I am alergic to acacia and corn starch so I am sure there are problems with them. I started the full tablet of 125 and also noted a swollen thyroid gland. This could be part of the Hashi symptoms of an inflamed thyroid and a little hormone being released by what is left of the gland. Or I could just have an infection like a cold. I have been reading more and more about Synthroid. The STTM Web Site recommends Hashi people stay away from Synthroid. Synthroid also causes nodules. I remember one past poster on the Old Forum said she got thyroid cancer from Synthroid. I have yet to read any research on that subject. I wish we could find all the old posters. I want to get away from ALL synthetic fillers once and for all. I could live with the Synthroid and its hives, but if there is another alternative, I want to go for it. I don't like the $79 per 100 tablets however. I pay $6.60 for 90 days of Synthroid. That is quite a difference compared to $79 for the 100 days of compounded. The un - ethics of the increase in price bothers me too. I have yet to hear from my cousin on what she had done for her prolaspe. Stacey: I now understand WHY you did so well on T3 alone. There is new research that now shows that our regular TSH and other tests will not be an accurate reading. That is why many people have normal thyroid readings and still have hypo symptoms. They are measuring only serum blood levels, not cellular. T3 evidently gets into the cells. Desiccated does too. I will publish the site for that article. It is a long read but well worth it. We need to see all the info out there to make solid decisions on our treatments. This article also stresses the need for patients to take full responsibility for their medical issues. We cannot put all our symptoms on a plate and hand them to a DR to resolve. We must research and learn. Karen, Can you check around to see if another compounding pharmacy would make it up cheaper for you? That is a really big jump in price! I agree that it just does not seem right for someone to make so much on this medication. Acacis is a terrible choice for a filler as so many people have tree allergies. I hope to never take synthroid again, and have not tried unithroid as it has acacia as a filler. I did not like taking the Nature-throid. It smelled unpleasant, and my sinus would start up while on it. I decided that to start taking my Sandoz from a year or so ago. I also have some 200's on order that I will split in order to avoid some of the fillers. I believe fillers are why one has problems with any thyroid medication and will make an effort to take as little of them as possible. Pill splitters work great. I don't know about hashi. I don't think gluten is a problem for me, but I have tried gluten free briefly thanks to a former doctor's insistence that all her patients try it. I did not notice anything except my grocery bill going up. Some of the items I tried were not that tasty, and got tossed. It seems to work fine for those who really need it from what I have read. It is great that Stacey is doing well with T3 cytomel. I wonder if Bonnie has tried this. Have a good evening all! Sue
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Post by karenandcollie on Apr 15, 2015 2:56:21 GMT -6
I can not find another pharmacy that uses the inorganic wheat flour. I am not sure Stacey is still on the T3 only. But I do remember she mentioned that she did well on it at one time. Stacey, are you there? In looking up information on TSH I found this. www.tiredthyroid.com/tsh.htmlThis article explains why the TSH test is not enough... |
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Post by Stacey on Apr 16, 2015 12:22:17 GMT -6
Hello this is going to be brief I'm doing well. I'm on 20 mcg Cytomel and 1grain of WP thyroid. My labs as 3-18 TSH 1.84 ( a little high for me ) RT3 12 (good) FT4 1.9 ( a little L but ok) FT3 2.8 ( a little L but better) Iron. 6 REALLY LOW Sorry don't have my Lab Ranges in front of me. So I'm trying to get my Iron up with Greens trying to find a good sorce of Iron that will agree with my tummy. And I can only take. ESTER - C Vitamin C to not hurt my Bladder and help with asorbation. Otherwise. My mom has been gravely ill but just had a FaceTime chat and she is much better hopefully going home today. My puppy Coco is good growing like Crazy and being all chocolate puppy.  ? I just had a chance to read the board. I dropped my phone and it cracked to no way of reading the screen. Yea got my same phone replaced and now up and reconnected to the world. I hope everyone is dong ok. I know everyone is still wishing we all had our old Levoxyl back for sure. But dealing with what we've had too hopefully we're all doing the best we can. I firmly believe we use T3 a lot and I know I don't convert so my labs listed are good but always room for improvement. I will never give up but will never go back to such horrible Meds as we have been given. Again this is only me and I know my chemistry as we are all very different. Sending well wishes to everyone. My Puppy is ready to go outside and play. So play time it is. LOL She really Needs. Litter mate. I just don't cut it all day long for her. Take Care and I hope everyone is feeling well. Stacey ? |
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Post by karenandcollie on Apr 23, 2015 12:28:34 GMT -6
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Post by karenandcollie on Apr 24, 2015 4:00:58 GMT -6
I found an excellent government study "Tablet splitting of a narrow therapeutic index drug; a case with Levothyroxine". It is a long technical read, but you can scroll down to "Conclusions" and get the summary of what was found immediately. This is INTERESTING as many of us, including myself, have been splitting our thyroid tablets. There is a color image showing how the T4 is distributed through 5 pills from 5 different manufactures. You can easily identify Synthroid and Levoxyl in this group by size and shape. Synthroid is L-1, Levoxyl L-5. I have always been told that the T4 is evenly distributed and cutting is OK. However, the conclusion I come to after reading the results is that cutting a pill is not such a good idea. Pills cut with pill splitters have the most failures due to the splitter fragmenting the tablet. See www.ncbi.nim.gov/pmc/articles/PMC2974142 |
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Post by karenandcollie on Apr 24, 2015 4:05:33 GMT -6
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Post by karenandcollie on Apr 24, 2015 4:08:46 GMT -6
I am not pulling up the site - you might try Googling the name of the article, " Tablet splitting of a narrow therapeutic index drug:a case with levothyroxine." Sorry for the trouble.
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