Welcome to your new forum!

Sue, you are posting just fine. After you log on go to the top (in purple area) and click on PROFILE. You can do a lot there and make your avatar too you
can even upload a photo as I did with my puppy.

It took almost 3 months on Levoxyl for the pounds to come off and BP to be normal for me. So hang in there. I have Kat to thank for that advise
because I almost gave up and she told me it took a while and she was right. Good luck and let me know how you're doing.

Janet

Bonnie, thanks so much and I am so happy for you too. Stockpiling is absolutely fine I even paid 63.00 without my insurance for
90 days to have an extra bottle on hand. I am glad you are feeling so much better and more functional!!!

My thoughts and prayers are with Carol & Kathy.

Where is everybody and how are all of you??

Karen, I am sorry to hear you are having trouble getting your refill. I am still struggling with Levoxyl. The endo suggested I work my way up to the 100mcg. She ordered the double dose 175mcg. I have even tried taking it at night which was actually some better. I don't feel bad on it, but the loose stools are just too much. Before asking for a different medicine, I thought I'd try the Tirosint 88 since I have almost a three month supply of it. After the fourth day, my tummy has felt rather off. I am thinking about asking again for the generic by Mylan. As far as I know, I have not taken that one. I did mention it to the male nurse who returned my call a few weeks ago. She prefers brand name. I do have brand name Synthroid on hand. My interist gave lots of samples of the 200 to halve. I had so much trouble with the acacia before that I am hesitant to try it even with half the fillers. I think my options are to try the Mylan, Synthroid or WP-Throid! My top doctor endo had never heard of WP-Throid and Westhroid did not seem to ring any bells for her either. She is actually on the STTM website as one of their approved doctors. She does not seem to really mind if one goes with T4 or T3 though. I am getting too long here. I wish you luck if you decide to try Levoxyl again. Hope to see some more posts soon from everyone! Sue

Sue: Actually the acacia AND Cornstarch are both causing the hives, I believe. I am allergic to both ingredients. I am taking a half dose of the 200 mcg Synthroid. I noticed a change in mental state - is the best way I can describe how I felt while trying the Levoxyl. I gave it five days. As I mentioned , this was last year. I believe it was when I was TSH of 60+. No thyroid med will seem to work well when you have a TSH that high. Maybe I should not rock the boat. I will think a little more before I take the Levoxyl. I have to wait 2 months to get it covered by my insurance - I just got a refil of the 90 day supply 3 weeks ago. So we will see, we will see.

KAT - I know what you are taking about. Seems like we have to fight for everything these days. But we know you can do it - you are a fighter, and hopefully the support here will help you to not give up on anything, ever. Glad to hear your first treatment went well on your cancer. Was this a return of thyroid cancer? Not sure if you mentioned the type of cancer that came back. Whatever, you are in my daily prayers for healing.

This Ebola thing is getting out of our government control. Why are they waiting so long to stop flights from those poor countries in Africa? It should have been done weeks ago. I agree we need to help them, but we must be "better safe than sorry" and make sure no epidemic of it spreads to our country. I don't believe this is an over reaction. I was so happy to hear the little dog of that Dallas nurse was NOT put down. The dog is being well taken care of. There is so much more to this story. Our government has not been telling us the truth per usual. There was a doctor interviewed on Fox News that has been studying Ebola since 2003 and HE said there is a chance the Ebola can spread via the air and enter the lungs. Well , that is off my shoulders now.

Bonnie:

I would strongly recommend an analysis of what foods or meds you might be taking too close to the Levoxyl before the DR ups the dose. There may be some interference with absorption going on. I had that happen to me recently. I decided to take almonds out of my diet after that. They are raw goitrogens and can interfere with t hyroid meds at any time of day. The 4 hour rule doesnt always apply. Something I learned that might apply to others. Good idea to stock pile. Please keep us posted on how you do.


Karen

When to take your labs for thyroid - fasting, or after eating - whatever - is highly controversial . I personally have always done the labs in the morning , fasting at least 12 hours. I did that primarily because the thyroid tests were included with other tests that required fasting.

Bonnie, I think that you should do exactly as you believe is best for you and exactly what your doctor recommends. Everyone is different. Although I do not understand how fasting or not can make too big a difference unless you are fasting for more than 24 hours. Any other opinions?? I just wanted to bring my personal experience to the Forum. Over the years I have been told to increase my dose due to a slight increase in TSH so many times I would now be on 500 mcg perday if I did increase the dose each time. I instead watched my eating habits and made sure I was not eating anything that could interfere with thyroid supplement or eating too soon after taking it and after doing that my TSH would be back to normal.

I hope to hear from Carol on that subject.

Sue,  here are the inactives from pdr.com in WP thyroid:  Inulin, Medium Chain Triglycerides, Lactose Monohydrate. I was definitely going to try
that if Levoxyl didn't work for me, but luckily it has.

How long have you had loose stools? I did for about 3 to 5 weeks this time as well as 13 years ago when I started Levoxyl. It eventually went away.
My Doctor will only write brand as well so I did go to wpthyroid.com and print their page (which is right now under construction) to show him it is
in fact a brand name drug.

Please post how you are doing with whatever you try.

Karen, thanks that IS a great idea and I will do it. I was at the Dentist today and the girl cleaning my teeth was freaking out about the new cases here.
It is very scary but I believe containable if the right measures are taken.