|
|
Post by Janet on Mar 27, 2015 18:48:27 GMT -6
Does anybody know what a TSH reflex is? He wrote my labs but I don't get them until June. He never wrote
reflex before.
|
|
|
|
Post by karenandcollie on Mar 28, 2015 4:05:41 GMT -6
Janet:
Sorry to hear your TSH is high. You do have a good DR. I hope the increased Levoxyl will work well for you. I never knew that about VIT D dosing, I will definitely take note of that information!
I too have never heard of TSH Reflux. Have you Googled it?
Take care,
Karen
|
|
|
|
Post by karenandcollie on Mar 28, 2015 12:11:26 GMT -6
Bonnie:
I am so sorry to hear of your difficulties - I certainly hope you can improve the situation. I am not at all surprised to hear of all your symptoms with a TSH of 15. The symptoms you described certainly follow the patterns related to hypothyroid. If you can just get your TSH and FT4 normalized, I know you will be back on tract. We thyroid med people have to be very careful about dosing and the foods we eat - so many things can interfere with thyroid med. Even VIT D has to be 4 hours away from taking thyroid.
Please take care and hopefully your doctor will help you get the thyroid med to work properly. It will take a lot of work on your part as well. My prayers are with you, Bonnie.
Karen
|
|
|
|
Post by Janet on Mar 28, 2015 12:20:16 GMT -6
Bonnie,
I think almost all the symptoms you listed are because you are hypo. You need to take a higher dose or find
another pill that you can take. You cannot continue this way!! You are risking heart disease and a lot of other
health problems if you continue the way you are right now. I learned a lot at the Doctor yesterday.
You live in Florida where it's sunny. My Vit D is low because I live in Chicago and winter just ended and
I am Irish. AND because I am hypo with a TSH of 13. You need to take a higher dose of some kind of thyroid med.
You also absolutely need to ask the Dr about taking Vitamin D.
You are literally risking your life. Your heart, your mental stability.
Please Bonnie, seek some help, find a Dr go to an emergency room. You cannot continue this way.Hypothyroidism causes high cholesterol and so many other problems. Read this: www.endocrineweb.com/conditions/hypothyroidism/complications-hypothyroidismand this: www.nytimes.com/health/guides/disease/hypothyroidism/possible-complications.htmlI am so sorry you have so many hypo symptoms - but there is relief and you absolutely need to find a Dr to help you. i will keep you in my thoughts. (Copied from your post) "bad heartburn, bladder infections, colon, bowel problems, dizziness, blurred vision, weird headaches, burning, shaking, fatigue, muscular pain, anxiety, heart palpitations" Those are ALL possible problems of being hypothyroid! I learned a LOT at my appointment yesterday and am just sharing what I learned. Janet
|
|
|
|
Post by Janet on Mar 28, 2015 12:37:27 GMT -6
Janet: Sorry to hear your TSH is high. You do have a good DR. I hope the increased Levoxyl will work well for you. I never knew that about VIT D dosing, I will definitely take note of that information! I too have never heard of TSH Reflux. Have you Googled it? Take care, Karen Hi Karen, I did google it and it's just IF your TSH is off they automatically run a T4. Thanks so much, Janet |
|
|
|
Post by Janet on Mar 28, 2015 13:50:23 GMT -6
Bonnie
|
|
|
|
Post by kat on Mar 28, 2015 16:10:37 GMT -6
Hi Everyone....Janet, I am so glad (not that You are hypo) but the correlation between vitamin D deficiency and hypothyroidism is like a DEATH SENTENCE. I never said the new levoxyl was the best but for me there are no alternatives. However, I will share a quick example of my doubting the 200 mcg dose I was on. I started taking LESS of the pill. I have NEVER self-medicated except on that terrible Sandoz and I started to have all the symptoms of "hypo". For the last two days I took the entire pill and I am starting to feel so much better. I will go to have blood work next week to the lab Janet suggested and I would bet my TSH levels are still in the hypo zone. I will never self-medicate my thyroid medicine ever again. I hope I continue to feel better each day. Hypothyroidism brings me back to the SYNTHROID/MAYO Clinic Journey where they were able to discern that I was not CRAZY but allergic to SYNTHROID and my TSH was 53. I was much younger and did not have the knowledge and tenacity that I have today. I PRAY for all of us. Pfizer does not care nor does any BIG PHARMA COMPANY. Remember last year when we did not have the pillfor over one year? We all have FREE WILL but if one is severely "hypo" it really distorts your thinking and is very Serious...Love...Kat
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Mar 28, 2015 22:53:13 GMT -6
Sue: Did you ever think of adding some iron rich foods to your diet instead of taking an iron pill? Liver sausage is my first thought. Many cereals are fortified with iron. One needs to be really careful in iron supplementation from a pill. It is VERY easy to over dose, then one faces much more serious problems. Kidney beans and many other beans have 10-15% iron. Of course spinach is iron rich. Just a thought. Janet: IS your itch coming from the skin? That could be hives. I get a few every week even after a year on Synthroid. They could oocur anywhere on my body. I had a friend try Synthroid and she was covered with HIVES. They disappeared after she stopped Synthroid. She went to a compounded with a filler of VIT C powder. She says it is working fine, tho I really don't understand how it could work. VIT C is well published to interfere with absorption of thyroid supplement. I tried the VIT C filler in 2013 for a month and my TSH went very high, meaning it was NOT working in me at all. After that trial I found ERFA Thyroid. Karen, I had to use iron supplements ten years ago after my gall bladder surgery, and had checks often. It took six months to the levels checked so I made the extra effort this time to have it checked. I used the same slow release brand of iron that my husband had been on after his heart surgery. I'd love to eat spinach raw, but have been under the impression for a few years that we thyroid patients should really keep consumption of raw spinach very low. I probably was thinking more of a multi with a little iron included. In the past, I have had loose stools after being on iron and took that to mean it was time to back off it. Thanks as always for your input and I will be very careful should I decide to supplement.
|
|
|
|
Post by karenandcollie on Mar 28, 2015 23:03:46 GMT -6
Sue: Raw spinach is definitely to be eaten with great caution and in very small amounts by thyroid med taking people like us! If it is well cooked it is not as much of a problem to most, but I still have to stay away from even cooked goitrogens.
|
|
|
|
Post by karenandcollie on Mar 29, 2015 3:56:48 GMT -6
Janet:
Does that 4 hour rule on Vit D dosing away from hyroid meds include sitting out in the sun to get your Vit D?
|
|
|
|
Post by karenandcollie on Mar 29, 2015 8:44:20 GMT -6
KAT:
That is a VERY hefty dose of thyroid med @200 mcg that you were prescribed. Normally the human being needs no less than 100 mcg per day for normal function. I am 5' 9" and 160 pounds and my dose is at an optimal 125 mcg. Are you sure your prescribing physician was correct? I am assuming you are of normal weight for a person of your height. Weight and height could be factored in there. It still puzzles me when I hear people are taking such a high dose, especially a woman.
Look forward to your reply. I hope you are feeling better!
Karen
|
|
|
|
Post by Janet on Mar 29, 2015 13:55:41 GMT -6
Hi Karen,
I forgot to ask that, about the being in the sun. I assume he assumed at 4 PM it would have been
several hours after thyroid meds. I will ask next appointment. How are you feeling? When do you have
labs? I also bought a multi vitamin. I always just took my husbands Centrum silver for men LOL but
I now have girly vitamins  I was also told to take Vit C so I bought that too.
Janet
|
|
|
|
Post by karenandcollie on Mar 29, 2015 23:24:34 GMT -6
Janet:
I am doing better after a month on the 125 mcg. I have been taking my temperature every morning under the arm and I am still low thyroid with a temp of 98.1. It takes about 2 months to adjust, so I will not have labs again until May. Allergies are very bad now, but the flowers are gorgeous! My head is swimming. There has been NO A FIB since March 5. The 125 heartbeat lasted for 7 days with little relief. The only thing that helped me at the hospital was an IV of 10 mg Diltiazem(channel blocker) and that lasted only about 8 hours. It took a 20 mg IV Diltiazem at the hospital when I had the 150-200 bpm attacks, but that would eliminate the A Fir for about a month. That was when I was severe hypo. I woke up Thurs Mar 5 at home and it was gone. I had been on the 125 for 3 days - must have been enough to work.
The hospital released me with a 125 heartbeat. I was upset about that. That was on Monday Mar 2, but by Thursday it had resolved. The hospital was too quick to get me out of the 48 hour max observation unit. I am still thinking about what to do about that issue. Who to write to, what to say. It was not right.
Our country is in a crisis with medical inadequacy.
|
|
|
|
Post by karenandcollie on Mar 29, 2015 23:25:53 GMT -6
I am going to do the "sun" time now after 4P. I could only stay out in our SAN sun for 10 minutes or less without getting burned.
|
|
|
|
Post by karenandcollie on Mar 29, 2015 23:30:26 GMT -6
Don't forget to take natural Vit E. It is the best anti coagulant there is. I have labs to prove it! You cannot take other anti coagulants while taking the VIT E. I would be curious to hear what your DR thinks of Vit E natural. That is the d-alpha tocopherol. You don't need all 8 parts to get the great benefits.
|
|
|
|
Post by Janet on Mar 31, 2015 16:04:51 GMT -6
Hi
I think I made us a Facebook page. It's a public page and I linked this page to it. I had to make a facebook page
so it's "Janet's Thyroid". That links to a group page "Thyroid Support Group" and I also mentioned the old Levoxyl about
.com page... I hope.
Please try to go there and tell me if it works and if you can think of any changes or suggestions. I can use any
help     .
Janet
|
|
|
|
Post by Janet on Mar 31, 2015 16:25:22 GMT -6
|
|
|
|
Post by karenandcollie on Apr 1, 2015 8:27:48 GMT -6
It is great Janet! Good job.
Karen
|
|
|
|
Post by Janet on Apr 2, 2015 2:12:27 GMT -6
Thanks so much, Karen. I am hoping we get people on this board from there and don't actually have to use facebook as I know not everyone has facebook. But any help you can offer would be awesome.
Janet
|
|
|
|
Post by kat on Apr 4, 2015 22:08:53 GMT -6
Hi Everyone....Janet, thank you so very much for all the hard work you put into both creating this forum and now linking us to Facebook. I share your ethnicity....Irish and have to avoid the sun. I will try the four o'clock stand out in the sun routine if we ever get sunshine. Pittsburgh (where) I live ranked SECOND on a list of cities having the least amount of SUNSHINE. I believe Portland Oregon was first. How depressing. I hope the higher dose of levoxyl works and you get out of the "hypo" range and back to normal. Karen, I will explain why in another e-mail why I had to be on the 200 mcg's of levoxyl. I hope you continue to improve on the Synthroid. Thank you for all the valuable information you post. Sue, Stacey and Cabro my prayers are with you in your struggles to find the right thyroid medicine. Happy Easter to the bravest and strongest group of WOMEN WARRIORS that I am so lucky to know and have learned so much from. You never give up, are not energy drainers and always stay positive. God Bless all of you...Love...Kat
|
|
.